Tuesday, December 16, 2008

Because I can't

Writing about this is thinking about this and thinking about this is grieving and guilting about this. And I can't just now, so this post is recycled from one I shared with some beloved friends. We are bound to each other by our stretchmarks and our secrets and while we don't see each other much at all, but we are always and absolutely shoulder to shoulder and shoulder for shoulder. Thank you,Dear Friends.

I know
that Solstice will come and light will return, but for now I am dark.

I'll try to minimize the backstory as much as I can. D. (that little red headed fellow) will be
tested for autism spectrum disorder soon. I cannot begin to tell you
the depth of my fear and grief. And it's not even a
surprise. We've been dealing with spectrum stuff for the last two
years, and I've been adjusting to it, or so I thought, but THE test.
THE diagnosis. Knowing it and saying it are two very different
things. I have to tell you that he is my heart. He is precious and
singularly beautiful to me. When I hear "Silent Night" there's that bit about "Love's pure Light" and the clean beauty of the line and the melody are exquisitely my son to me.
But this is hard. Hard in so many ways.

It's hard to take everyone places. It's hard to explain to people.
It's hard to do everything, every-freaking-thing. There are things I
know and things I feel and those things are miles apart. I can't
begin to explain my guilt. You wonder what you did, you know? or
didn't do. yes, I know the answer, but a mother's heart isn't logical
like that. Did I miss something? Have I been in denial at his
expense? Am I just bad at this? I'm exhausted and scared and right
now, there's no one to talk to. And it is grief and guilt, and you
can't talk sense to either of those. I've cried more this week than I
can ever remember. And there's a lot of other stuff, Dh is working
evenings now, I've got some medical things, family things--it's just
very, very bad right now. My doctor is blown away by all the crap
factors. A few weeks back she offered to put me in the hospital for
respite. Seriously. And there's nothing to be done. No, I mean it.
I don't need to learn more about autism, I need to grieve. My
beautiful boy--love's pure light. The one most like me, the one I hold most closely to my heart. God help me. How will his life be? How hard will it be? How did this happen?
Who Did This? I wish I could be stronger--my children don't
need this crazy weeping woman dishing out chicken nuggets at them over the dutch doors, god
knows, but I am so weak about it. I know it could be worse. yes, I
know. I know, I know, I know. But I am still screaming.

Not exactly the shiniest holiday catch-up card, is it? Oh, and just this morning, I made my therapist cry. I didn't say mean stuff or anything, just um...gave her the holiday catch-up.
Yeah.

1 comment:

Anonymous said...

Leslie, I always consider it a bonus if I make my therapist cry. Validates my feelings and all. Wish I was there to cook nuggets for you so you could take a long bubble bath alone...and read a good juicy book. I too remember grieving for Carson--gone was the "perfect" boy I thought I had. I just knew his poor life would be all trouble and hardship--but it's not. And neither will D's. Perfect--just different than "regular". xxoo M

Martie of http://uncontainedchaos--take2.blogspot.com